Me against Me, Living with or against Fibromyalgia

I've been struggling for a few years now with health issues, it's been ever since I had my daughter in 2003 but I was always a frail girl, lots of allergies as a child, always hated to run, just wasn't tip top.  Damn, if I had been born just a couple of hundreds of years ago, I highly doubt I would have made it out of childhood, but alas, I did.

My struggle with myself is the idea that this thing I'm dealing with may just be all in my head.  I was diagnosed with Fibromyalgia but I can't help but think that it might just be some figment of my imagination.  Maybe it's not as bad as it seems, maybe I've just wallowed a bit too long.

I tend to go up and down in these very predictable cycles.  I will become lazy, that's how I feel, and rest more, give myself more sleep etc. and start to feel better then I tackle the world.

This week I was without the usual assistance I'm used to having (Ugh, it was hard to ask for it because I've already had snide comments or rumors that someone is taking over my job or doing far too much of my work) and have been working gungho!  First time in a while where I did it all on my own and I've been running around the office like a crazy person.  But it felt good to get so much done!

Well, it hit me tonight that maybe it's not all in my head.  I mean, as people pray to keep their jobs, I pray to lose mine, hoping that I might get laid off so I can at least collect unemployment.

Sad.

Me against me, because I then get quite frustrated with myself, that I'm somehow giving up.

I went to our local DFA meeting last night.  It was just fabulous to get out and see people I've met over the last couple of years.  It really meant a lot to have a chance to talk politics with people face to face and to really feel part of a community.  But I talked too much and got home too late and still had to get up at six thirty am and get to work.

What was I thinking?

This is my frustration, I just feel as if I am fighting myself constantly.  It's in your head, no it's not and then of course my body makes a ruling of it's own.  

Right now my hands ache, my legs, I have a bit of a headache that radiates around my face.  My chest hurts on and off and I'm fatigued to the point where I could have gone to bed hours ago, 7pm, 6pm, I've done it before.

And so this fight keeps raging and I keep wondering if someone else could just make this choice for me.  Fire me!  Something.

I'm in the boat others are with debt, mortgages etc, but I know if I were to get laid off we would manage.  We would get rid of a car, defer our student loans (or forbearance, right?) and we would attempt to modify our mortgage but I feel awful because there are people who are doing this against their will.

There are millions losing their homes without a choice.  There are millions losing their jobs without their choice and I have sat down at work and wished for a nice fat, well, a joke of a severance and unemployment so I wouldn't have to admit defeat and apply for disability.  I'm not disabled!

Me against me.

So here I sit, aching all over and not being able to think about anything but this.  It's consumed my life really, all the projects I've wanted to work on just float in the back of my mind, something to distract from the real thing that's churning those brain seas.  What to do.

I've put off going to school for years, I've put off a lot of things and at times I wonder if this is my body's way of making the choice for me.  You will stop working and you will take care of yourself.

Who knows.  I don't trust myself most of the times and I do worry that somewhere inside of me I'm just a lazy fat lady who wants an excuse to fail, a reason to wrap my self pity around.  

So, there it is, that's my missive tonight that really is a personal rant and something that probably should stay in draft mode, but being the self abusive person  I am, I share those things that others may not.  I hope that if I can have one person get it, or one person feels they aren't the only one, well then the little bit of embarrassment is worth it.

Hey, it's who I am.  Someone I like and admire much said I was "raw".  I guess I've been fighting that for a long time, that can be tiring too, fighting yourself, trying to be something you just aren't.  Me against me.



Display:


Tips (2.00 / 9)

for taking the gloves off from time to time.


by Ellinorianne on Thu Dec 04, 2008 at 11:57:39 PM EST

Damn... (2.00 / 4)

And I thought my life was hard! Keep it up, Elli. You're neither weak nor lazy.You're probably one of the hardest working Democrats in Orange County. Never give up.

OK, I guess I also need to take my advice. I've been SO frustrated with so much this week. Sometimes, I feel like I'm banging my head against a wall. I just came back from an (OC LGBT) Equality Coalition, and I'm already tired & worn out now.

We all get frustrated, and we all need to remember not to let our frustrations wear us down.


Want to defend marriage equality in Maine? Ask me how!
by atdleft on Fri Dec 05, 2008 at 12:44:17 AM EST
[ Parent ]

Re: Damn... (none / 0)

Everyone has something they struggle with Andrew, so it's not even fair to compare, please don't.  And you have the title of hardest working Democrat :)  I just talk a lot!

And I loved getting out Wednesday night, I had coffee with Joe and Rosalind and then was able to spend time chatting with Giovanni and Pierre back at Strauss.  I even loved having my glass of beer and enjoyed my dinner (Although I lost 40 in cash somewhere along the way, which really annoyed me).

And, I changed my registration yesterday so I can be a delegate, which is going to be fun.

One thing at a time dear and be nice to you, beating your head against the wall just hurts you not the wall!


by Ellinorianne on Fri Dec 05, 2008 at 11:20:10 AM EST
[ Parent ]

Re: Tips (2.00 / 3)

I had fibromyalgia for over 15 years and I got rid of it around 5 or 6 years ago. If you are interested in hearing how, e-mail me on the c4o list.

Holli


The Moose is on the loose. "And I scream at the top of my lungs, what's going on?"
by Hollede on Fri Dec 05, 2008 at 03:54:57 AM EST
[ Parent ]

its not just you. (2.00 / 5)

know that.  i have known people who have suffered with this and shared your worries.  yes - everyone lives with pain, hey we are all human right? - but not like you do.

chin up.


"Democracy! Bah! When I hear that word I reach for my feather Boa!" -- Allen Ginsberg
by canadian gal on Fri Dec 05, 2008 at 12:17:38 AM EST

Re: Me against Me (2.00 / 6)

Yes, I believe that I understand how you feel as I live with Constant Neuropathic pain on a daily basis, throw in some Arthritis too.

My advice is to keep your mind as busy as possible..blog and believe that you can conquer what seems impossible to conquer..and never give up.

All my Best ;-)


"If you want others to be happy, practice compassion. If you want to be happy, practice compassion." Dalai Lama
by Predictor on Fri Dec 05, 2008 at 12:17:39 AM EST

Re: Me against Me, (2.00 / 6)

My mother has battled with fibromyalgia since about 1977 (when my middle, younger brother was born).  Back then, they had no name for it.  She's been through the "Chronic Fatigue Syndrome" label, the "non-specific myopathy" label (handed out by the Mayo Clinic), several times she's been told she has MS (and that's still a possibility, but for insurance reasons she won't get tested). Her problems have been labeled psychosomatic, she's been called a hypochondriac, etc. etc.  It's not been a fun ride for her.  So, I feel for you.  The one thing I'd say for sure is that it isn't just in your head.  Of course, from my point of view, even if it were, what the hell difference would that make?  SSRI anti-depressants may help somewhat, but they aren't a cureall.


by slynch on Fri Dec 05, 2008 at 12:19:27 AM EST

Re: Me against Me, (2.00 / 6)

I'm currently on effexor and have had my dosage upped to see if it helps.

This is very common among women too, who aren't taken very seriously when it comes to health issues as it is.  A damn shame too.  It has to change.

Thank you


by Ellinorianne on Fri Dec 05, 2008 at 12:22:30 AM EST
[ Parent ]

Re: Me against Me, (2.00 / 5)

The bad thing is that some of what you're describing having right now (the on and off chest pain, headache, etc.) may be side effects of the upped dosage!  My mother has struggled with that issue for years. Up this and get side effects that are just as bad as what the medicine is supposed to relieve.

You should get that chest pain checked out though!

Hang-in there.


by slynch on Fri Dec 05, 2008 at 12:33:24 AM EST
[ Parent ]

Re: Me against Me, (2.00 / 2)

There's chest pain and there's chest pain. When my fibro causes chest pain it's muscular, around my lungs. It's very uncomfortable to breathe, but I know it's not associated with my heart. Of course, I can't speak for Elli.


"The spirit of resistance to government is so valuable on certain occasions, that I wish it always to be kept alive." -Thomas Jefferson
by Nag on Fri Dec 05, 2008 at 09:35:12 AM EST
[ Parent ]

Re: Me against Me, (2.00 / 2)

No, you are right, it's not my heart and it's muscular in nature.  It goes through my back and also tends to be around my lungs as well.  Fun stuff.


by Ellinorianne on Fri Dec 05, 2008 at 11:00:03 AM EST
[ Parent ]

have you tried acupuncture? (2.00 / 4)

I would try to get a referral to an acupuncturist with experience treating fibromyalgia.

What have you got to lose? It might help more than meds.


Join the Iowa progressive community at Bleeding Heartland.
by desmoinesdem on Fri Dec 05, 2008 at 12:33:41 AM EST

That's a good idea... (2.00 / 3)

Thanks for sharing. My dad should try that for his back pain.


Want to defend marriage equality in Maine? Ask me how!
by atdleft on Fri Dec 05, 2008 at 12:46:39 AM EST
[ Parent ]

Re: That's a good idea...except (2.00 / 2)

The problem is that many with Pain issues that could be resolved by Acupuncture could also be on Blood Thinners,such as I am, and therefore I cannot use Acupuncture, unfortunately.


"If you want others to be happy, practice compassion. If you want to be happy, practice compassion." Dalai Lama
by Predictor on Fri Dec 05, 2008 at 01:17:47 AM EST
[ Parent ]

Re: That's a good idea...except (2.00 / 1)

Why would blood thinners preclude acupuncture treatment?


"The spirit of resistance to government is so valuable on certain occasions, that I wish it always to be kept alive." -Thomas Jefferson
by Nag on Fri Dec 05, 2008 at 09:36:43 AM EST
[ Parent ]

Re: That's a good idea...except (2.00 / 1)

I think perhaps you don't want to take the chance to start any kind of bleeding because it's so hard to stop.


"Who are you for? That is the wrong question. It should be who is for you?" HRC
by skohayes on Fri Dec 05, 2008 at 12:48:23 PM EST
[ Parent ]

Re: have you tried acupuncture? (none / 0)

It's on the list of things to try, so I've thought about it, along with yoga, exercise, diet changes and rest.  The problem is, it's very hard for me to get around to these things because I struggle to just make it through my days.  That's the most frustrating part.


by Ellinorianne on Fri Dec 05, 2008 at 11:02:00 AM EST
[ Parent ]

My wife struggled with the same things. (2.00 / 3)

It's definitely not all in your hed. When my wife was working 40 hour weeks, she'd be cane-bound after a full day. Her rheumatologist warned her against overdoing it; he said it could permanently exacerbate her condition. Now she can only work a few hours a day, but I haven't seen the cane in months.

I hope you get better. The key to my wife retaining the little mobility she has was finding an excellent specialist to treat her. She had to wait almost six months for her first appointment, but it was well worth it.


by Bob Sackamento on Fri Dec 05, 2008 at 05:27:03 AM EST

Me too (2.00 / 3)

Ellie, you're not alone.  I have fibro to the point of disability. My Dr thinks it is due to a series of traumas to the head, neck and spine. Chronic pain is my constant companion. Fibro pain is all over... chest muscles that make breathing tough; skin hurts to the touch, like a virus; muscular pain all over... everywhere.  Then, there's the spinal pain from injuries and arthritis. I'm on lyrica, morphine and vicodin. I'm on an anti-depressant. Depression comes with the territory. At first I flocked to the chronic pain boards, but found that I focused too much on my own pain and gravitated away from them. There are "cures" galore to be found on the net... I don't trust most of them.  

My Doctor tells me to fight it whenever I can. I know that sitting and giving in to the pain is easier, but how fast the human body atrophies with no activity! He says my pressure points are gradually decreasing. To tell the truth, I can't tell. But when I feel kind of ok, I go at things like gangbusters. I fight it. There's always the subsequent time when I have to pay dearly for overdoing it. Or just barely doing it. Or sometimes just trying it.

The depression is palpable and I suppose unavoidable. But my glass has always been half full and I'm not just a basket case who's always depressed. I wish I knew some secret formula to tell you will work. All I can say is that I understand and sympathize with your troubles.  


"The spirit of resistance to government is so valuable on certain occasions, that I wish it always to be kept alive." -Thomas Jefferson
by Nag on Fri Dec 05, 2008 at 09:31:35 AM EST

My Mom (2.00 / 3)

    My Mom had fibro in her face and neck. She couldn't take many meds, but acupuncture helped her a lot.


by marsalt on Fri Dec 05, 2008 at 09:59:54 AM EST

Living with or against Fibromyalgia (2.00 / 1)

Even though I have no advice for you, just wanted to say I understand what you are going through.

My mother told me something once that applies here.  She said "Never go to work when you are sick.  Once you are there, nobody will appreciate what a sacrifice you are making just to show up.  They will expect you to do your job as usual."

That's the problem with a chronic condition.  You have to bite the bullet and go in when you are hurting.


That One is the Right One for 2008.
by GFORD on Fri Dec 05, 2008 at 11:47:37 AM EST


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